Alyssa was born in 2009 with a birth defect called Hirschsprungs Disease and was able to discreetly hide her special powers(that's what we have told her) until the age of 6. In November 2015, we noted her "chronic constipation" condition had worsened and before we knew it, she had gone 8 days without a bowel movement. That's when our lives changed forever.
After 11 months of doctor visits, enemas, laxative treatments, manual irrigation cleanouts, a 2 day hospitalization, invasive tests, behavioral treatments, psychological evaluations, a revert back to diapers and wipes daily, battling all types of Anxieties along the way and an overhaul to our parenting style, we exhaustively had reached a diagnosis! Now going forward, while we can't cure Hirschsprungs, surgery seems to be the only option to get back some normalcy for her. She will be undergoing a multi stage operation to cut and remove a portion of her sigmoid colon, where she will then have a stoma and a colostomy bag for approx 2-3 months. Once her Intestines heal from the cut, then they will go back in a perform a pull thru operation to reattach her colon to her rectum.
We have done all we can for our babygirl, and most importantly will continue to stand up for her as her voice. She has a wonderful heroic and brave complex to her that will be her pillar of strength.
As a mother of three, solely responsible for the expenses and time off, I am human enough to put down my ego and ask for help. Alyssa will not only be undergoing the procedures, but the long term treatment and costs associated that are in our horizon, are overwhelming. We are confident that with God's grace and protection, she will overcome these challenges and be the superhero she is meant to be!
I am a mum of three precious children, one suffering from Hirschprung Disease...wanting to connect, share, support and make a difference.