My name is Georgina Altas and I am a mum of a child who has Hirschsprung's Disease. My son was diagnosed with HSCR as a newborn almost eight years ago.
I have set up a non-profit organisation called Help For Hirschsprung’s Disease to help families who’s children suffer from HSCR . My son’s HSCR was treated with surgery. But even children who are treated appropriately with surgery can still suffer from chronic problems with constipation, incontinence, abdominal pain and sometimes these children fail to gain control of their bowel movements. This can be a significant challenge for children of school age.
As a parent I worry for my son dealing with constipation and more recently, incontinence. I provide my son with a hygiene kit (my son calls it his toiletry bag) to take to school. These are small bags that he takes to school which contain a pack of mini wipes, 2 pairs of underpants and 2 mini plastic bags. These toiletry bags have made him feel more secure and confident knowing that he has everything he needs in a discreet toiletry bag that can be taken to the bathroom without anyone really knowing what it is. In all honesty these bags have been a real milestone in dealing with his disease at school. It gives my son independence and peace of mind.
Our experience has inspired me to commence making up these bags for other children with Hirschsprung’s Disease, particularly children of school age. I supply these toiletry bags at no charge (however, depending on shipping location, parents or carers may need to send me a post satchel with return postage paid so I can send the bag to them). I have attached a document containing pictures of a hygiene bag to give you an idea of their appearance. I am hoping that these bags can help other children with HSCR as they have for my son.
I would also like to offer a network of support and information to children and their families through my facebook page, instagram page and this website.
I am a mum of three precious children, one suffering from Hirschprung Disease...wanting to connect, share, support and make a difference.