Irina Pyatak ,
This is Jason he is ten years old and a twin baby,diagnosed with Hirschsprung's disease at 3months old.
When he was a day old he had surgery on his esophagus (HD related)his esophagus was very narrow and he had a hole in his trachea.
He has had three other surgeries one was open heart and spent the first year of his life in hospital.Jason had a ileostomy for about a year and then got reversal surgery.Today Jason is like any other ten year old boy !!!!!
I am a mum of three precious children, one suffering from Hirschprung Disease...wanting to connect, share, support and make a difference.